The Long Goodbye is Over

 My husband, Bill, passed from this life on Monday, November 24, 2025, at 4:10 p.m.

What began as an infected wound ultimately ended Bill’s long struggle with Alzheimer’s. When the VA called on November 21 to say he was running a fever, I drove up the next day to visit him. I could see that he wasn’t doing well. On Sunday, November 22, they told me he was “transitioning,” his body was beginning to shut down. 

Wil drove down from Austin Sunday night. On Monday morning, the three of us ate breakfast together; then Wil and I drove to the VA while Shelly stayed to watch Freya. 

Irene, the hospice nurse assessed the situation and said, “It could be an hour, possibly a day, but death was imminent.”

We spent the day saying our goodbyes as we watched his body struggle to hold on. The team kept him as comfortable as possible, giving him medication as needed. By 3:45 p.m., we knew it wouldn’t be much longer. 

I had never seen someone die before. It was emotional and difficult to witness. Bill was in very good health other than Alzheimer’s, and he fought like hell as his organs began to shut down, one by one.

Around 3:50 p.m., his eyes rolled back and his vitals stopped. Irene looked at me with a shake of her indicating this could be the end. She began the countdown on her watch. After two minutes, I texted the kids and told them Bill had passed. (Wil had stepped out of the room for a moment.) However, no sooner had I done so when Bill jerked up and gasped another long, crackling breath. He was not giving up, yet.

I jumped up in shock. “What is happening?” 

Irene explained that this was not unusual. “His heart is so strong, and it doesn’t want to give up.” 

However, at 4:05, he ceased all signs of life again. Wil had returned and we were holding Bill’s hands, one on each side. Irene started the countdown. This time, Bill did not revive. he was gone at 4:10 p.m. His body was worn from the battle, but I could see that he was finally at peace. 

Irene called the mortuary while the staff prepared Bill’s body for travel, finally draping him with an American flag. 

The Veteran’s home played taps as our procession made its way out of the building and into the parking lot. After a few words from the staff, Bill was placed in the waiting vehicle for the ride back to Galveston.

This morning, I am both heartbroken and grateful. Heartbroken that my companion of 55 years, through good times and bad, is gone. But, grateful that the relentless cruelty of Alzheimer’s has finally ended. Bill is no longer suffering from pain, confusion, and fear. He is free at last.

And I am free at last - free to grieve, to cherish the years I had with him, and to move forward with my life. Will I see him again? I don’t know. I don’t have the answer to that question. All I know is that he is no longer suffering, and that is what matters to me.

Make it stop . . .

I walk in and find Bill lying in bed, a thin white sheet covering his deformed frame which looks more like death than life. I reach out to comfort him, attempting to rub his outstretched arm, but quickly snap back in shock when I feel bones where tissue used to be. His muscles have atrophied, and now even his fatty tissue is wasting away. There isn’t much left of my husband.

The nurse tells me he has a bedsore that's become infected, so now—on top of the morphine for pain and the medications to keep him calm—they’ve added antibiotics, hoping to keep him from developing sepsis. 

Bill opens his mouth as if to speak. Nothing comes out. But I notice his teeth, discolored from so many drugs. Bill always took good care of his teeth. He would be horrified to see them now.

Sadie, the hospice nurse, says they’re trying to find out why Bill is so combative when the aides try to bathe him. It has become so bad, they are now waking him at 4 am to give him his pain medications in hopes he’ll be more docile when the aides come at 6. They are not sure whether his combativeness is pain or something else. He can’t tell them.

“Hi, Bill,” I say. “How are you? Are you okay?” His eyes move, but I can tell he isn’t really seeing me. He looks like he’s trying to speak, but no sound comes out. I lean closer, hoping to catch a word, a phrase—anything—but still nothing.

I wonder what’s going on in his mind. He’s in a strange place. He can barely move. He can’t see; his eyes lost most of their vision years ago. That part isn’t new, but it must be more frightening now.

I feel completely helpless. What can I do? How can I make this better? How can I help him? But the horrible truth hits me again: I can’t. There is nothing I can do. I can only watch him die, one cell at a time.

I want it to stop. I want to shout at someone, anyone: Please make him better. Please stop this torture. How much more does this man have to endure? How much more do I have to endure?

But there is only silence.

I pick up my purse and leave my husband of 55 years in the hands of the hospice nurses. My soul can take no more . . . not today. 

Morning Inspiration

 This inspiration came at just the right time. Today, I've been told by my Anchor Hospice social worker that I should preplan Bill's funeral (and mine!). UGH! Getting old is the pits! Of course, as my father-in-law used to say, "Consider the alternative!"

So, I went on the Malloy Funeral Home website hoping I could it all online. Nope, might have to go in. Not my favorite thing to do! I am not good with funerals or funeral homes. A new thing to stretch Cindy Downes. . .

I called the funeral home and got someone who didn't know what to do. So, I get to postpone it to tomorrow!

UPDATE: I met with Tiffany on Wednesday and made the funeral arrangements for both Bill and me. It wasn’t nearly as difficult as I expected. Tiffany immediately put me at ease and gave me all the information I needed—and then some. I actually walked out of the mortuary in a surprisingly good mood.

Bill will be interred at the Houston Veterans Memorial in Houston, Texas, with a full veteran’s ceremony, including taps and a flag presentation. It’s exactly what he would have wanted.

Since Shelly is the “keeper of the ashes” in our family, I gave her a choice about what to do with mine. I could go with Bill to the Veterans Memorial, or I could be turned into “memorial stones.” She loved that idea, and so do I. She’ll be able to place them in her garden. I only wish I could have had stones from my mom—they’re truly beautiful.

One more task checked off the list.

The Next Stage - Hospice Care

Today, I made the decision to place Bill under hospice care. He has declined much faster during these last six months; and now, he is in the last stages of dementia. My goal is to ensure that he remains as comfortable and free from pain as possible during this last transition. The VA uses Anchor Hospice. They were gracious, informative, and took the time to answer all my questions. So far, I am very happy with them.

This has been one of the hardest decisions of my life, even though I know it’s the right one. I was happy to learn that Medicare pays for hospice. What a blessing that is!

I appreciate your good thoughts and understanding as I navigate this next chapter.

Caregiving - PBS Documentary

Everyone in the United States should watch this video from PBS. As it says, there are four kinds of people in the world:

Those who have been caregivers.
Those who currently are caregivers.
Those who will be caregivers
And those who need caregiving.

This film documents the history of caregiving in the United States and reveals the state and the stakes of care in America today. Please share.

https://www.pbs.org/video/caregiving/

Gratitude Journaling

I got up this morning with the realization that, in spite of my difficulties, I am a very blessed person. So, I decided it was time to write another gratitude blog. Here goes:

I get to live in a beautiful apartment that's perfect for me. First, there's a kitchen filled with everything I need for my experiments in the culinary arts.  I have appliances for every application and spices of every kind. I can grind my own wheat, bake my own bread, make a simple, grilled cheese sandwich, or prepare an international feast from scratch - Indian, French, or my current favorite, Mediterranean. 

I have a craft room where I can practice my art - whether it's making birthday cards, sublimating mugs, or creating 3-D pictures of turtles and flowers. I can work alone or with my very special "crafty chicks," a gathering I look forward to every month.

A Roland piano sits my main living area where I see it every day, a reminder that music is always within reach to soothe my soul. I sit down two or three times a day, learning to play just a bit better than the day before. 

My bedroom is a work in progress, decorated in purple and rose – colors that make me feel peaceful and provide a safe space to rest. Butterflies float on the walls, around pictures of outdoor scenery and signs that read: "Accept what is," "Let go of what was," Have faith in what will be," and "Believe in yourself." These remind me of my Stoic philosophy to live each day as it comes. 

I have storage, too - enough for both my "treasures" and my hurricane supplies!  In fact, my closet is so spacious I'm about to set up my sewing machine and serger inside to make sewing more convenient. I put these tools away several years ago because I have no one to sew for, but maybe I can use them now to sew children's clothes for someone else as way to give back.

Finally, I have a pool – four feet of cool, clear, blue water where I can swim my 20 minutes of laps each day to stay fit and "trim." Well, trimmer! LOL! 

In addition to having this perfect-for-me place to live, I have wonderful people in my life. I have two, very special children who take good care of their "mama" making sure I don't go off the deep end! They help me with hard decisions and remind me to take care of myself as well as Bill.

I have friends and relatives who make life exciting with fun "adventures." We share meals at fine dining spots, quirky Hobbit-like cafes, and local diners. We visit museums, attend plays,  and go to the symphony. We play Canasta, Cribbage, and Swoop, challenging each other to keep our memories sharp. We explore unique places, near and far – sometimes even lying on the floor, mesmerized by dazzling lights. And best of all, they put up with my idiosyncrasies and listen when I need to process the emotional roller coaster of Bill being in memory care.

What else could a person want? I am truly blessed. 

An Emotional Day

What a day. So many emotions – happiness, sadness, anger, gratefulness - all crammed into one day. 

The happiness was seeing my son, Wil, and his new dog, Freya, a white husky. Spending the last few days with them was a welcome distraction from losing Oreo.

Today brought the sadness. Wil, headed back to Austin, stopping at the VA so we could visit Bill together. I brought Bill outside to meet Freya. On the way, Bill said, I'm going to see "Oreo." I didn’t correct him-it would have been too upsetting. He was already agitated.

Outside, he recognized Wil right away but was frightened by Freya. Our visit was short; Bill wanted to go back to the safety of his pod. Inside, he grew more anxious, repeating, "help me, help me," over and over, with an occasional "I love you" thrown in as well. In his hallway, he kept saying, "help me hallway, we're back in my hallway, my hallway, help me." It's so hard to hear the confusion in his mind. 

Back in his pod, one of the other residents began shouting at Bill to stop it, even threatening him. At that point, I took Bill and went to find his aide before a fight broke out. I finally spotted her by the nurses' station limping and holding her hip as if she was in pain. She was in the process of taking a medication of some sort. Now, I was angry. "How can she take care of these patients when she's in pain? How can she help get Bill in and out of the Hoya lift or move him around on the bed to change him? Why isn't she at home healing while a capable aide takes her place?" I understand that she may not have sick time, but that doesn't help my husband. 

We finally got Bill settled, and I went to find the head nurse. I discussed the issue and she assured me the problem would be addressed. I left as there was nothing else I could do. 

Generally, I find the care at the VA very good. This was a definite outlier and it makes it hard to leave Bill knowing things like this happen. But what can I do? 

My gratefulness is for a Trader Joe staff member. I stop there occasionally when I'm in Houston because I love Trader Joes! As the staff member packed my freezer bag for me, we chatted about Galveston and Bill. When she finished checking me out, she asked, "What is your favorite color?" I told her purple. She insisted I wait at the register and left. Shortly, she returned with two beautiful bouquets of purple-pink flowers all neatly packed in a bucket with water and wrapped in two paper bags. It was a lovely gesture!

 I'm so grateful for the kind people in my life. It makes all the other emotions less painful.