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Sunday, March 30, 2025

Prompt: What is Life Teaching you Right Now?

My prompt for the day was: What is life teaching you right now? How are you handling this test?

Without thinking about it too much, this is what I wrote. I think it sums it up pretty well even if it's not that well written!

Life is teaching me to take one day at a time. Plan, but be flexible. Resilience is the key. Keep my goals high, but "roll with the punches." Life throws a lot of curve balls.
Make each day the best it can be. If my circumstances warrant, I'll enjoy an extra treat or spend my money on myself. If not, I can go out and enjoy the free things in life: nature, friends, and libraries. I can also use up all the "stuff" I've already accumulated.

Finally, life teaches me that winning the battle does not win the war. Let it go, is my motto. The Universe is going to work it out the way it wants. I will adapt and find ways to make my new world better. 

Thursday, March 27, 2025

Distractions from a scary world. . .

Today's visit to Bill was better in that I knew what to expect and I'm learning how use distractions to deal with it.

Bill's in a new phase of this disease where he can express himself for a short bit; then he starts cycling through with the same phrase, over and over again. "Help me, help me, oh please help me."

After making sure he was OK, I decided to try distracting him. I asked him if he would like to go on a vacation. He smiled his big "cheesy" smile and his eyes lit up like a child's at Christmas. So, we began to talk about our vacation. We're going to go to the Redwoods in California and take many magnificent photos. "No, I won't forget to pack up your cameras for the trip," I assure him when he asks. 

We'll walk arm-in-arm straight through the middle of one of those gigantic Redwood trees just like we've seen in pictures! 

Then, we start talking about flying to Hawaii to take that honeymoon we never took. We talk about the mountains we'll have to cross to get there, the plane ride over the ocean, and the fact that his mother graduated college in Hawaii. 

Our little "fairy tale" vacation kept him occupied for quite a while; then it was back to "help me, help me, please help me." But I was happy. Bill had a few moments of pleasure, even if it wasn't real. But then, what is real to Bill right now?

After our visit, I had a meeting with his medical team. It was a productive meeting. They answered all my questions; we discussed hospice, palliative care, and a new plan for his pain treatment. They are now adding regular pain meds throughout the day and before he goes to bed. At this time, he does not need hospice or palliative care. He is still eating, hasn't lost any weight, and has no major health issues. The VA does everything that hospice or palliative care would do at this stage of Bill's illness. My main goal was to make Bill more comfortable, so I feel that we accomplished that.

The hardest part about the meeting was when I asked them about the repetitive "help me help me." They assured me that this behavior is one of those things that happens to some Alzheimer's patients as they get closer to the end. Some scream, some whistle, some repeat phrases. And, as one of the nurses reminded me, "It's only going to get worse." My mind heard that, but pushed it aside.

I came home and crashed on my bed thinking about how Bill's face lit up when talking about the vacation he will never get. Then, I remembered what the nurse said - that it was only going to get worse. "How will I get through this?"

I reached out to my two friends, Bev and Carol. They let me cry til I had no more tears to cry. Then, they distracted me with a crazy personality test where I "discovered" I was bossy, judgmental, and an extrovert. It made me laugh and my eyes lit up, just like Bill's.

Just as my friends distracted me from the scary thought of watching Bill as he deteriorates, I must distract Bill from the very scary world he's living in. 

On my next visit, perhaps we'll go on a cruise to Alaska or take a road trip to Montana. We've never been there. . .

Sunday, March 23, 2025

Writing Practice - Poetry

One of my goals in life is to improve my writing. As a journalist, I tend to write concise and to the point. I'm trying to add some "life" to my writing. 

With that goal in mind, I recently purchased a journal called, "Write the Poem." Each day, it provides a theme and eight, word associations. Today's theme was, The Ocean. The word associations were: billows, deep, brine, offing, wave, flux, tide, and current. So here goes my attempt at poetry:

The Ocean - image created by Ai

The Ocean

The ocean is deep, 

With waves that billow

And rage across the miles.

Brine floats in the air

Filling my nostrils with the perfume of the sea.

Wave after wave crashes against my raft

As I float…

Drift…

Bob…

Weave to and fro.

The tide moving me onward

To an unknown destination

Like the currents of life.

I try to control them

But I can't.

Thursday, March 20, 2025

Downsizing-A Memoir

Recently, I was invited to teach a class on downsizing at OLLI. My first reaction was, "What do I know about downsizing?" Many OLLI members own multiple properties, expensive antiques, and have well-established networks for passing things along. Me? I’m a middle-class woman with everyday stuff. I have no grandchildren, and most of the possessions I have, my children do not want.

Then, I began reflecting on all the downsizing I’ve done over the years. I’ve moved from a large home to a small ranch, eventually selling everything we owned to live in a 33-foot motorhome. I transitioned from a 3,000-square-foot house—where we lived for more than twenty years—into independent living, then later from a spacious apartment to a very tiny one. I’ve held my own estate sale, cleared out my in-laws’ century-old Victorian home, and sent its contents to auction. Along the way, I’ve stored belongings, passed some to relatives, donated much to charity, and sold the rest.

Maybe I do know a little bit about downsizing...

My first real downsizing adventure began in the 1980s when my husband, Bill, took an early retirement to pursue a master’s degree in photojournalism. At the time, we lived in a beautiful custom-built, two-story brick home on an acre lot in Delaware—about 2,800 square feet. 

Our dream home being built. the one in middle.

Christmas in our Delaware home.

Moving to a three-bedroom ranch in Virginia Beach, half the size, required shedding a significant amount of our belongings. We stored some of our nicer things at my in-laws’ and gave away what we couldn’t take. Other than the sadness of leaving my dream home for a rental, it wasn’t a difficult move.

Three months later, everything changed. Bill’s father passed away, leaving my mother-in-law, Marilyn, completely unprepared for independent living. Her husband had managed all the finances, done all the driving, and taken care of the shopping and cooking. So, with two kids in tow, I moved in with her while Bill remained in Virginia Beach to finish his degree. Every weekend, the kids and I made the 17-mile trek across the Chesapeake Bay Bridge and tunnels for visits.

Our 33' motorhome parked at a friend's house.

What was supposed to be a short stay stretched into months. Eventually, we cleared out the rental, sold or gave away much of our belongings, and moved Bill into a 33-foot motorhome while the kids and I stayed in Delaware.

Perhaps motivated by the fact that there were now two bosses in the house—or more likely, the presence of my two energetic children who discovered the bomb shelter in her basement, loved exploring her antiques, and encountered a nude sunbather in her backyard—Marilyn eventually gained her independence. The kids and I were headed back to Virginia Beach.

“How are we going to fit in the motorhome?” my pragmatic son, Wil, asked.

“We’ll find a way,” I said, with more confidence than I felt. “It will be an adventure.”

Truer words were never spoken. Our adventures were many, including burying a cat under the Yonkers Raceway, getting stopped for speeding in the middle of the Buffalo Mall, and avoiding a drug bust in Canada—but those stories will have to wait for another day.

Shelly, Wil, and Bill "dining" in the motorhome.

Bill studying for his Masters Degree

After Bill’s graduation, we moved to Pennsylvania, where he took a job at Teen Challenge, a farm that provided job training for former drug addicts. The organization offered staff housing, but “housing” was a generous term. Our home was a dilapidated trailer with crumbling wood paneling, worn-out appliances, and the constant aroma of cow manure.

Wil, my keyboard player, asked where he should set up. “Easy, just stick it in the closet and swing open the bifold doors when you’re ready to play,” I replied. I had bigger problems to worry about, like dodging the rotted hole in the middle of the hallway, cooking on a stove so rusted it belonged in a museum, and greeting the occasional 6’5, 350-pound ex-con dropping by to ask for my husband. We were doing “God’s will,” so I powered on.

During our time in Pennsylvania, Bill’s mother passed away, and we returned to settle her estate. Her Victorian home was packed to the rafters with antiques, newspapers, and the aforesaid bomb shelter full of rusted canned goods that were now leaking all over the floor. It took an entire dump truck just to clear out the trash. We kept what we could and sent the rest to auction.

The Downes family home.

In 1991, Bill accepted a position at a large church in Tulsa, Oklahoma, where he could use his photojournalism and computer skills. Real estate was affordable, so we purchased a nice, 3,000 square foot home in Broken Arrow. We spent the next twenty years filling it with furniture, books, and the many other treasures that accumulate during married life.



My porch backed up to a lush greenbelt in Oklahoma.
Deer, raccoons, beavers, and other wild creatures were constant visitors. 

Then, in 2008, Bill’s health began to decline. He mysteriously lost vision in one eye, then the other, a precursor to his Alzheimer’s. He was forced to quit work, so I returned to college, finished my degree, and took a teaching job.

By 2014, I was handling everything—working, driving, cooking, cleaning, yard work, finances, and caregiving. Exhausted, I decided to downsize from our 3,000-square-foot home to a 1,200-square-foot cottage in an independent living community. With the help of friends, I organized an estate sale, raising $8,000 to help with our new medical expenses.

Oreo enjoyed chasing squirrels at our Independent Living cottage.

Independent living was supposed to lighten my load, but Bill’s struggles intensified. The man who once graduated magna cum laude was no longer able to operate his iPhone, a TV remote, or even a washing machine. It was time for me to stay home and care for him full time. Without the extra income, we had to move again—this time into a two-bedroom apartment.

The VA diagnosed him with memory loss in 2019, and by 2020, I was breaking under the strain. My children insisted we move to Galveston to be near my daughter, Shelly. That move, in the midst of COVID and with Bill’s full-blown Alzheimer’s, was one of the hardest. But no downsizing that time—just survival.

The real reckoning came in 2022 when Bill needed nursing home care. I couldn’t afford both his medical expenses and our apartment, so I sold nearly everything we owned on Facebook—keeping only what would fit into a 725-square-foot space. This was the most challenging downsize I had ever faced, both practically and emotionally. I lived there for two years.

Living room, dining room, kitchen, craft room: All in one! 

Eventually, I secured Bill his VA benefits, so he’s now in a Veteran’s home with memory care. With our income freed up, I was able to move into my current, beautiful, 1,200-square-foot apartment in fall of 2024.

My new apartment!  Big living room. 

Separate craft room.

And a beautiful kitchen!

As you can see, I’ve upsized and downsized quite a bit in my life. And I’ve learned a few downsizing tips along the way. But the most important thing I’ve learned? It’s just stuff. Letting go of your possessions isn’t losing—it’s making space for what truly matters.

Thursday, March 13, 2025

Today's Visit-A Downward Progression on the FAST Scale

I’m definitely seeing downward progression in Bill. Each week, he communicates less and less, replaced by more and more repetitive speech. Mostly, it’s “Help me, please help me.” The nurses say he does this constantly now. When I stop him and ask, “Bill, tell me what’s wrong,” he just says, “I don’t know.” Sometimes, he’ll start saying it in the middle of a sentence, as if his mind is stuck in a loop. If I distract him with a photo of the kids or Oreo, he’ll smile—but then, almost immediately, he returns to the refrain: “Help me, help me.” He even says it while they feed him. It’s relentless.

The changes in him are stark. He can no longer stand or walk. He tilts his head like it’s difficult to hold up. And now, this loss of meaningful language—it all points to him progressing toward Stage 7 on the FAST (Functional Assessment Staging Test) scale for Alzheimer’s. I had to look it up again. This is the scale used to determine treatment plans for Alzheimer’s patients. Once they reach Stage 7, they qualify for hospice care. This stage can last anywhere from six months to two and a half years, depending on other health conditions. Since Bill is otherwise relatively healthy, he may stay in this stage on the longer side.

When he does speak, he asks to go on a ride. He wants to be in a car, to go somewhere—anywhere. And I so badly want to take him. But I can’t. I can’t get him in and out of the car by myself. If he needs the bathroom, he requires a lift to help him up. He wears incontinence pants, but until recently, he still wanted to try using the toilet. However, I haven’t heard him ask to go on my last two visits, which is unusual in itself. He was asking to go every 10-15 minutes.

The thought that he may never go on a ride again makes me so sad. I need to see if I can make it happen, even just once more. Maybe I can hire a caregiver to go with me, even if it’s for just 30 minutes. I’m going to look into it.

Today was another rough day. And I know it’s only going to get harder. So if I call you up just to cry for a bit—thank you for listening. I’ve done that to my kids and several friends. Please know that it helps. And I’m grateful to you for listening. That's all I need, is for someone to listen. 

The FAST Scale:


Wednesday, March 12, 2025

My 75th Trip Around the Sun (Memoir)

February 22, 2025, marked the completion of my 75th trip around the sun—and what a journey it has been! Like everyone, I’ve had my share of good days and bad days, but this particular Saturday was unquestionably one of the good ones.

I celebrated my 75th birthday surrounded by my daughter, Shelly; my son, Will; my cousin, Debbie; and more than two dozen friends from the Galveston area. I hadn’t had a birthday party since elementary school, so I decided this one would be special—one to remember.

I rented the Club Room here at GYB, handcrafted a special shirt and party invitations, and took on the challenge of catering it myself, with Shelly’s help. The menu was a feast: homemade quiches, hash brown casserole, bourbon-glazed little smokies, yogurt parfaits, fresh fruit, a charcuterie board with homemade bacon jam, lemon blueberry muffins, bagels with cream cheese, and a birthday “cake” made of coffee cake. Shelly kept the mimosas flowing, and everything came together beautifully.

My friends Bev and Carol took charge of decorating, while Shelly and Debbie finished up the food prep in my apartment. Will became my unofficial “secret service agent,” tracking down my keys every time I lost them—which, in my excitement, was often. Oma arrived with balloons and beads, handing them out to guests as they arrived. Meanwhile, my friend Debbie (from Alvin) played photographer, capturing all the special moments as people trickled in beginning at 9:30.


The party was everything I had hoped for—a warm, lively gathering that celebrated not just a birthday but the life I’ve built here on this island. When I arrived in Galveston in the middle of the pandemic, I knew no one. But slowly, friend by friend, my world expanded. Now, I’m surrounded by a wonderful, eclectic mix of people who brighten my days and enrich my life.



I am one lucky 75-year-old!